There is a fine line between paranoia and gut instinct. It’s the difference between the “feeling” you
develop when you intimately know your partner and obsessive worry about every
twitch. At times, I’m not sure I know
the difference.
I know Marty, I know almost every nuanced movement, I know
the yawn, the stretch, the moan and the slump. I watch and sometimes I assume and I almost
always wonder, “Is this a sign”.
When you do this for a time, when you are another person’s
life line, when you know someone so well, when you have seen illness come hard
and heavy you get paranoid about all of those twitches. That means when Marty yawns my heart rate
speeds up and the adrenalin starts to pump just a little harder. Is it a yawn or is it a precursor to
something worse?
There’s the line, there’s the decision point, which is what
makes this really hard for someone who embraces and feels anxiety like it’s
your skin, for someone who struggles to keep the demons of worst case at bay.
I confess, I don’t really know how to differentiate between
what is a real symptom and what is simply hyper-vigilance. Experience helps with perspective but
experience also means I have seen what can happen with Marty and how fast, how
amazingly fast she can go from fine to on the edge of extremely not fine.
It is the thought, the fear of the consequences of inaction
that haunts me every day. It is the
thought of the very real awful results of inaction that deepens anxiety and
causes me to doubt.
Early on in our journey I worried about being one of “those”
caregivers, one of “those” almost hypochondriac types of patient/caregivers
that jumped the gun at every cough, sneeze, burp or fart. I did not want to be that guy, I didn’t want
to be the old man that health providers avoided because we were always there
with every little thing.
My doctor told me to forget about that and not worry about
what others might think. He said I knew
her the best and I should follow and advocate for my “gut” for my “feeling” because
I was the one who knew her best.
He was right and Great and Wise has been the supreme
advocate for following my instinct. He
never fails, when he makes a diagnosis or recommends a course of action, to
ask, “What do you think?” or “How do you feel about that?” The doctors listen to my gut.
I remember one trip to the ER when Marty had been showing very
early signs of sepsis due to an undetected UTI.
The doctor did the all of the appropriate diagnostic tests and came back
and said, “You do know your wife.” Duh.
My knowing my wife is not the problem. My learning to be a strong advocate for Marty
is not the issue. My evolution to a
proactive as opposed to a reactive caregiver is not in question. As a caregiver you have to be all of those
things.
The issue is how do you know the line, how do you
distinguish between paranoia and the real coming storms that will certainly
come back to visit us.
Truth….I don’t have a clue, if I did I would have my anxiety
levels in check more than I do. If I had
a clue I wouldn’t catch my breath at a yawn or a stretch or a cough or a
sneeze. If I knew how to tell the
difference between real illness and my worry about a real illness I would …..
well I would be a lot smarter than I am because most of the time I worry way
too much.
When someone I know experiences a bad medical issue or
trauma, I, as someone who is filled with Gandalf like wisdom and insight offer
advice, of course I do. My best advice
is one day, one issue at a time and don’t borrow trouble.
At some point in time I might listen to myself. Naw….that would make way too much sense.
1 comment:
Just because you're paranoid doesn't mean you're paranoid. Keep doing that think you do.
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