Last Saturday was my birthday, my 59th.
That weekend, Easter weekend, for my birthday, my children,
grandchildren and parents came to our house on Richland Chambers reservoir to
help me celebrate. On my birthday, that
last Saturday, I was the chief and only caregiver for Marty.
When your birthday is on Easter Eve and when your caregivers
are all relatively young with young children you find yourselves, on days like those,
flying solo because every one of them had children commitments and I can’t say
no to their day off requests for children’s commitments.
In years past, and I mean before the strokes, having the focus on anyone but me, having to
care for anyone in any way on my birthday would have been a colossal downer, a
reason for me to feel put upon, forgotten and neglected for my birthday. Dressing, feeding and caring for my brain
damaged wife would have been low on my priority list of birthday celebrations.
Things change.
For too many years I looked for ways to feel slighted on my
birthday, I looked for people to over look my day so I could feel self righteously
neglected. Marty finally convinced me
that if I wanted people to make a big deal out of my birthday, if I wanted
people to make me feel special, that was okay, but you had to let people know
what you wanted. So I learned to
campaign days before my actual birthday, to insist on appropriate greetings,
salutations and celebrations for the day.
I say this to point out that I am not a selfless altruistic
guy. I’m still a pretty self-involved
guy. Don’t forget my birthday, it pisses
me off and fulfills my basest thoughts about myself and others.
But, things change.
Marty has taught me, caring for Marty has taught me, there
are greater things that we must do and in doing these things we celebrate not
only others, but our own life.
I wasn’t born knowing this; in point of fact I probably
didn’t truly understand it until Marty had her strokes. Caring for Marty is hard, often thankless,
lonely, frustrating, frightening and very simply the most decent thing I have
ever done.
Caring for Marty has made me better than I was. Caring for Marty has helped me understand
that there really is a greater good.
It’s one of those fake it till you make it kind of things, if you do a
decent thing long enough it soon becomes okay to do decent things, it soon
becomes a natural part of your life, it soon becomes apparent that doing for
others is elevating for the self.
Last Saturday, my 59th birthday, as Marty and I
sat on her bed that afternoon, watching our grandkids hunt Easter eggs through
her bedroom window I felt different.
Marty has insisted that I grow, Marty’s strokes, her infirmity has made
me different.
Years past I would have felt sorry for myself because I was
forced to care for Marty sans a
caregiver, because I was forced into some isolation with Marty, because someone
else’s needs needed to come first, even on m birthday.
Under the right circumstances I can and occasionally do fall
into a self-righteous funk; but the default today is just to do, to care, to
dress, to feed, to wipe, to give medicine and to do it without feeling put upon
or neglected. The default today is to do
that most decent thing and to do that most decent thing without feeling morally
superior, because I know I am in no way superior.
It is still a daily struggle, the fight between helping and
wanting to be helped, it is easy to fall into the victim role of why did this
happen to me. But then I realize, it
didn’t happen to me, I’m just the guy helping the one it really happened to,
even on my birthday, I’m just the guy
coming to grips with the beauty of caring.
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